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Voices of ME Blog

Do you have Chronic Fatigue Syndrome / Myalgic Encephalomyelitis (ME/CFS), Long COVID, or a related chronic illness? Share your story today to raise awareness and inspire hope within the community. And don’t forget to read the many uplifting stories of people living with chronic, complex diseases around the globe. 

You have undeniable power.

Submit Your Story

Your story has undeniable power. By sharing your experiences, you can inspire hope for all those living with ME/CFS and related, multisystem, chronic, complex diseases (msCCD). Whether you are a patient, caregiver, advocate, or healthcare professional, we invite you to submit your story and be part of our OMF Family. Your story may be featured on our social media accounts (@openmedf), digital newsletter, and website.
(*indicates required field)
Ideas to start your story
  1. How long have you (or the person you are writing about) been ill? 
  2. What was life like prior to chronic illness? (You can describe your career, hobbies, passions, social life, etc.) 
  3. What does daily life look like now?
  4. What gives you the most hope on your bad days?
  5. What is one thing you wish every person would understand about chronic, complex diseases such as ME/CFS? 
Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

What are the advantages of giving from your Donor Advised Fund (DAF)?

  • Your gifts to your donor advised fund entitle you to an immediate income tax deduction at the time of contribution.
  • You avoid capital gains tax on appreciated assets you place in your donor advised fund.
  • Your fund’s investment gains accumulate tax free.
  • Funds are distributed to Open Medicine Foundation in your name and immediately put to use to support our worldwide research efforts.

How do I make a donation through my DAF?

Just click on the DAF widget below. It is simple and convenient to find your fund among the over 900 funds in our system.

Still can’t find your fund? 

  • Request a grant distribution through your Donor Advised Fund sponsor
  • Be sure to use OMF’s EIN #26-4712664
  • You can also designate OMF as a beneficiary for your Donor Advised Fund
  • Questions? Give us a call at 650-242-8669 

Thank You

For your Submission